tag:blogger.com,1999:blog-4354611353352376072024-03-04T21:44:53.706-08:00Strength*Faith*StruggleSantiago's Storyhttp://www.blogger.com/profile/15876325045939592915noreply@blogger.comBlogger26125tag:blogger.com,1999:blog-435461135335237607.post-83729742303136347812012-11-01T08:51:00.001-07:002012-11-01T08:55:14.325-07:00To infinity and beyond....After Santis scary episode last week, we wanted to make sure Halloween was fun! We are so grateful all three of our kids joined us in trick or treating. Bella was a Bumble Bee, Bryce was Sponge Bob and Santiago was Buzz Lightyear. Santi is doing better still very tired a lot more then usual. We are still trying to figure out what happen but as of right now we have no answers. Please keep him in your thoughts and prayers. I never want to call 911 again!! <div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhWZV3WqSiwpO8CEqvx1aY5K8i_7HWDlbjte-7QdRKmQlDntxaHfXxVtkh1q1qTzaNxgeehyphenhyphen9c5ccPCoigKSpgFzF59eKFwqRSKTkMBYRxDRZX1DShrqSjqCvcqgVJtInRW-lecziuW29E/s640/blogger-image--1288277837.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhWZV3WqSiwpO8CEqvx1aY5K8i_7HWDlbjte-7QdRKmQlDntxaHfXxVtkh1q1qTzaNxgeehyphenhyphen9c5ccPCoigKSpgFzF59eKFwqRSKTkMBYRxDRZX1DShrqSjqCvcqgVJtInRW-lecziuW29E/s640/blogger-image--1288277837.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjYnkPffSXX-DPJX-UVezAWguCIQxEIF3jRvAcb28ns0NRGtzAU4XTgEyDRDJVdW-NbzDYc5O_c4SpTtmg64MCCcfOC25zA6L1IOG5Ldzwa-zee2wtSSjtbw61sfBI2Am2XBU3TjsP4A8k/s640/blogger-image--1823784516.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjYnkPffSXX-DPJX-UVezAWguCIQxEIF3jRvAcb28ns0NRGtzAU4XTgEyDRDJVdW-NbzDYc5O_c4SpTtmg64MCCcfOC25zA6L1IOG5Ldzwa-zee2wtSSjtbw61sfBI2Am2XBU3TjsP4A8k/s640/blogger-image--1823784516.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhoaNjYJ4VpTydSbrQZPSXTBxOSgV2iu1GRcculXtSWIKALz2FnecRyD_JP4NMhtZOqzetvKhvR4JAfGNYkdSF9px4RsBftOftU7_drImpHYGC9TRO-QbGctMwbnleXmNZefV7uMkA7Q-E/s640/blogger-image--1519242201.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhoaNjYJ4VpTydSbrQZPSXTBxOSgV2iu1GRcculXtSWIKALz2FnecRyD_JP4NMhtZOqzetvKhvR4JAfGNYkdSF9px4RsBftOftU7_drImpHYGC9TRO-QbGctMwbnleXmNZefV7uMkA7Q-E/s640/blogger-image--1519242201.jpg" /></a></div>Santiago's Storyhttp://www.blogger.com/profile/15876325045939592915noreply@blogger.com0tag:blogger.com,1999:blog-435461135335237607.post-47539817069539872722012-10-26T23:32:00.001-07:002012-10-26T23:32:45.576-07:00Scared like no other!So Santi wanted to make sure mommy was on her toes Tuesday. Tuesday I had to call 911 because Santi was unresponsive and could not wake him for nothing. The fire department got to the house and after a little while Santi woke up. They put him in the back of the ambulance and Santi started screaming ( music to my ears ) when I arrived at the hospital he was back to his crazy self. We are not sure what caused the event on Tuesday but we are so happy to have our sweet warrior prince back home and in our arms . It puts into perspective just how fast life can be taken from us. I truly thought I might have lost my son Tuesday. Thank you to everyone who prayed for us. We are truly grateful !! <div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi4r0ASeMqt4MZT-dB8ZzXuzDm11jIqsEU4dJeg4fFRVwKnWNhlDcsCtR7qaS-Z7chWbIBPRSpw1uMqMltG2gZ-wfzNhMha5DAk-qiws3BzhHbTyXHfaRsCcfJ6LRwjf4b7elco8AyzUWk/s640/blogger-image-2110970736.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi4r0ASeMqt4MZT-dB8ZzXuzDm11jIqsEU4dJeg4fFRVwKnWNhlDcsCtR7qaS-Z7chWbIBPRSpw1uMqMltG2gZ-wfzNhMha5DAk-qiws3BzhHbTyXHfaRsCcfJ6LRwjf4b7elco8AyzUWk/s640/blogger-image-2110970736.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg2rao0IoRLlyMD60Dq2sWuW7slVpEu3-erLal7RDcKmZdxh5z5Cc-VGYv2Hc2hYmAjWsxpTM6Nz6R5yZpryZIgZDaEV2H1mu3iRHFPpHwmOo04fV3M6DH0OMcheda2rcWFawRWPCjh6TM/s640/blogger-image-1757790899.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg2rao0IoRLlyMD60Dq2sWuW7slVpEu3-erLal7RDcKmZdxh5z5Cc-VGYv2Hc2hYmAjWsxpTM6Nz6R5yZpryZIgZDaEV2H1mu3iRHFPpHwmOo04fV3M6DH0OMcheda2rcWFawRWPCjh6TM/s640/blogger-image-1757790899.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhx0rdFILovk7lolzhmHVV6uVxPDzHWeUy6U74YODtdUFlW9GzetPnVx1AxXvjtwDF4kVtfGEb_IJ39YRn0IDDwpmGXtaw-i1ZZRu4trvF7yHQF8qf5tiUUlC_ef8PDS6jYtu0xwi4HXtU/s640/blogger-image-1992335122.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhx0rdFILovk7lolzhmHVV6uVxPDzHWeUy6U74YODtdUFlW9GzetPnVx1AxXvjtwDF4kVtfGEb_IJ39YRn0IDDwpmGXtaw-i1ZZRu4trvF7yHQF8qf5tiUUlC_ef8PDS6jYtu0xwi4HXtU/s640/blogger-image-1992335122.jpg" /></a></div>Santiago's Storyhttp://www.blogger.com/profile/15876325045939592915noreply@blogger.com0tag:blogger.com,1999:blog-435461135335237607.post-17901284655905092952012-10-17T17:01:00.001-07:002012-10-17T17:01:05.843-07:00PhotosWhat a hard life!!! Says Santiago who is THREE years old and LIVING life with Trisomy 13 ring!! What a blessing <3<div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjxsFw3fpkeuY1bsaNLs1w3Y8FZSShhikL5HvBhTIzKQq2Wapdf1Cd65PGcwfnb6UFWkt9tc07FiQsQlXQ_zsUtJA6zSLTfySnPsSYQS5gYmpv2aO9nnXzKzgLRX6r72qkHeAuRFviSaWA/s640/blogger-image-1366061201.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjxsFw3fpkeuY1bsaNLs1w3Y8FZSShhikL5HvBhTIzKQq2Wapdf1Cd65PGcwfnb6UFWkt9tc07FiQsQlXQ_zsUtJA6zSLTfySnPsSYQS5gYmpv2aO9nnXzKzgLRX6r72qkHeAuRFviSaWA/s640/blogger-image-1366061201.jpg" /></a></div>Santiago's Storyhttp://www.blogger.com/profile/15876325045939592915noreply@blogger.com0tag:blogger.com,1999:blog-435461135335237607.post-31534856994040046902012-10-17T15:39:00.001-07:002012-10-17T15:39:18.071-07:00First parent teacher conference!Santi is doing so well in school!! His teacher just adores him. It helps to let your special kids go to school if you have a good relationship with the teacher. Santi is following instructions. He's hanging up his back pac he sits and listens to classroom stories and songs. He's just so amazing!! He continues to do ALL things we were told he never would. Keep showing them son!! So proud of you!! Xoxo when he gets home I give him the IPad and he gets so into it.. I just low him TONS!!!<div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjrn_Wzay5HE8Gqt6uMFpYuZAbHUXXW15KW9WBd6-1q-nh4LSNbtlSUxVIZzghUxoP94MlVYkz9VQdHXJi9mwWk5yYevd0r2411nS_zMNkMS2Rf_aYU8hhyLnj01tRPvWwo3S3XVLpExV0/s640/blogger-image-351802354.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjrn_Wzay5HE8Gqt6uMFpYuZAbHUXXW15KW9WBd6-1q-nh4LSNbtlSUxVIZzghUxoP94MlVYkz9VQdHXJi9mwWk5yYevd0r2411nS_zMNkMS2Rf_aYU8hhyLnj01tRPvWwo3S3XVLpExV0/s640/blogger-image-351802354.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgJBJnnlrejPWgCi1c4LZcvepZp8pujrpOLqn53A3wN-dPgeVRcWW4kaClIbj-h_Q2KnKFJSjokepOVLdKohlYdQijiqs6PLsGHnHY_gndl-GaYZmZDUtPTb1CtqMjg-ag73GKge8v5zDo/s640/blogger-image--1672879123.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgJBJnnlrejPWgCi1c4LZcvepZp8pujrpOLqn53A3wN-dPgeVRcWW4kaClIbj-h_Q2KnKFJSjokepOVLdKohlYdQijiqs6PLsGHnHY_gndl-GaYZmZDUtPTb1CtqMjg-ag73GKge8v5zDo/s640/blogger-image--1672879123.jpg" /></a></div>Santiago's Storyhttp://www.blogger.com/profile/15876325045939592915noreply@blogger.com0tag:blogger.com,1999:blog-435461135335237607.post-72623853614506026392012-10-17T12:59:00.001-07:002012-10-17T12:59:26.758-07:00Santi counted to FOUR!!!!Yesterday during speech Santi counted to FOUR!!!! I am so proud of him and all his hard work. He truly AMAZES me everyday!!! <div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEizFHODC__iqhtJYw9r4v5E2SIq4Uc4BxH1gUSCUjEIxN5rRqZ84M-NG9zcQHkt0_BRVY00p2q2OaH3UiB8rt0XfpaEr8KRinwRf3amgvYTKjSDBHc3v_3e8IQxitLAbYONQySnnDOmT-I/s640/blogger-image-1730242090.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEizFHODC__iqhtJYw9r4v5E2SIq4Uc4BxH1gUSCUjEIxN5rRqZ84M-NG9zcQHkt0_BRVY00p2q2OaH3UiB8rt0XfpaEr8KRinwRf3amgvYTKjSDBHc3v_3e8IQxitLAbYONQySnnDOmT-I/s640/blogger-image-1730242090.jpg" /></a></div>Santiago's Storyhttp://www.blogger.com/profile/15876325045939592915noreply@blogger.com0tag:blogger.com,1999:blog-435461135335237607.post-52844393988678381072012-10-05T05:25:00.001-07:002012-10-05T05:25:08.039-07:00Imagination MoversSanti attended is first LIVE concert with HOPEkids Arizona. We were all able to go to the Imagination Movers LIVE concert and had a blast. Santi was dancing and grooving. It was great to see him enjoy himself so much!! He was even yelling and screaming for more more more!! Haha Everyone enjoyed the concert a night to remember for sure! <div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhDbNHRL6RIrH642MgKkCFlXa4kTeVWzq9zCDM1ZYntr0J3eCr570Ziv6AxK5m_8I6ttGz-Fldx-k0jCMEVCBtXcnmuVTomfrxsI8uggOpbtSE3N0A74nC832VfMq2ljos6VfLH1gbQV2s/s640/blogger-image--874194838.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhDbNHRL6RIrH642MgKkCFlXa4kTeVWzq9zCDM1ZYntr0J3eCr570Ziv6AxK5m_8I6ttGz-Fldx-k0jCMEVCBtXcnmuVTomfrxsI8uggOpbtSE3N0A74nC832VfMq2ljos6VfLH1gbQV2s/s640/blogger-image--874194838.jpg" /></a></div>Santiago's Storyhttp://www.blogger.com/profile/15876325045939592915noreply@blogger.com0tag:blogger.com,1999:blog-435461135335237607.post-48915856205511961232012-07-25T09:44:00.001-07:002012-07-25T09:44:01.583-07:00First day of PreschoolSantis off to his first day of preschool! He went with his teacher as if he's known her for years lol mommy on the other hand is a stress ball. I'm sure he's having a blast!! I'll post more about his big day once he gets home!! :) <div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj-Tnm4kdApZBuvuYWy8gzvfHs6mWIQ8qPzk0hCvmaAuhGBgl_MNaZKavGhWLLnjivXW6ujqaNfwbhe3-XSsGiEP5oxyoMOASQ7U9yxlcWt8W8DMYFkxrG4vq8R-8WtzlwTUiQ-c35Fua8/s640/blogger-image-845571362.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj-Tnm4kdApZBuvuYWy8gzvfHs6mWIQ8qPzk0hCvmaAuhGBgl_MNaZKavGhWLLnjivXW6ujqaNfwbhe3-XSsGiEP5oxyoMOASQ7U9yxlcWt8W8DMYFkxrG4vq8R-8WtzlwTUiQ-c35Fua8/s640/blogger-image-845571362.jpg" /></a></div>Santiago's Storyhttp://www.blogger.com/profile/15876325045939592915noreply@blogger.com1tag:blogger.com,1999:blog-435461135335237607.post-6108758057471734572012-06-21T21:17:00.001-07:002012-06-21T21:17:26.254-07:00Catching up!Well I haven't updated for a while.. Santi and the rest of the kids had gotten really sick so I was busy busy!! Their on the up n up now and back to their ever so crazy selfs lol. Santi is such a crazy boy haha I just love watching him he just amazes me. He's come so very far am ever so grateful. He pulled out his tube (I know big surprises) haha he hands it to me and just STANDS there while I pop it back in no even a move he then takes the water and pushes in by himself! Omg this kid hahaha. I have photos to post also but I'm tired and heading to bed! Kisses to heaven tonight for all those beautiful angels who have gone home way to soon!! Xoxoxo <3Santiago's Storyhttp://www.blogger.com/profile/15876325045939592915noreply@blogger.com0tag:blogger.com,1999:blog-435461135335237607.post-14603680834587396572012-05-20T12:06:00.001-07:002012-05-20T12:06:29.336-07:00Peter piper fun!!Yesterday we took the kids to PPP and they had a blast. It's fun to watch Santi now as he's getting older. He's so into everything, he was watching everything and what people were doing around him and really into the games. He's so much fun and has such a great personality! It's a dream come true watching ALL my kids playing and having fun together. 3 years ago we would of never thought it was possible . Thank you LORD for blessing me with such an amazing family <3<div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEik7F4wF5GAUjA7Bx8Nth_4xKOM6DVePKgD9419yWXM6YiIzOtIe1sfhz7aPNGJjb9fs-O91QQELr_hQRKOBY49FI_EyjNxAd9rNU4j1FnnExh9UVrTVT1G_7fmNaWl-XyRP78635gyafI/s640/blogger-image--2040621674.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEik7F4wF5GAUjA7Bx8Nth_4xKOM6DVePKgD9419yWXM6YiIzOtIe1sfhz7aPNGJjb9fs-O91QQELr_hQRKOBY49FI_EyjNxAd9rNU4j1FnnExh9UVrTVT1G_7fmNaWl-XyRP78635gyafI/s640/blogger-image--2040621674.jpg" /></a></div>Santiago's Storyhttp://www.blogger.com/profile/15876325045939592915noreply@blogger.com0tag:blogger.com,1999:blog-435461135335237607.post-55384749473126820502012-05-08T10:53:00.001-07:002012-05-08T10:53:41.792-07:00He's at it again!!!Santi man is crazy!!! He has pulled his G tube out yet again!!!! (mind you he just did this a few weeks ago) Have to take him in to the surgeon because he did it over night AGAIN!!!! He's real smart I think he does it at night now knowing we won't be able to get it back in come morning time!! Lil brat!! Hahaha on the up side of everything he has done better on his swallow study so he is improving so maybe we can remove the g tube for good some time!! That's our excitement for the day so far!! Hope everyone is well <3<div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh-_MYBOtQnogQS3eZdTdkp8i95uYD82YhWdO6HUmpAkSjzSnQ00qqu2Xzz7buwUmrSGZxxmf3owdk_9xi-jHvQo21GwOC3oYF3UdH7rSi5vrnL0-3WSqx3Oja39keun3cyvEQD8WLFflU/s640/blogger-image-1333027030.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh-_MYBOtQnogQS3eZdTdkp8i95uYD82YhWdO6HUmpAkSjzSnQ00qqu2Xzz7buwUmrSGZxxmf3owdk_9xi-jHvQo21GwOC3oYF3UdH7rSi5vrnL0-3WSqx3Oja39keun3cyvEQD8WLFflU/s640/blogger-image-1333027030.jpg" /></a></div>Santiago's Storyhttp://www.blogger.com/profile/15876325045939592915noreply@blogger.com0tag:blogger.com,1999:blog-435461135335237607.post-62178291895545521022012-04-28T00:52:00.001-07:002012-04-28T00:58:05.071-07:00Pure Joy!Santi is the joy of my life as well are my other two kids! I am amazed everyday to see Santi grow and learn. His newest thing is to try and hook himself up to his tube ( which he has not used for feeds in forever ) hahaha he's so smart ! Also want to tell you that Santi had a swallow study yesterday and he has improved tremendously he has gone from honey think to nectar this is so huge for us he has been on honey for 2 years now with no change until now!!!!! Amazing so proud of my lil big man!! Xoxo And here's some pics from his third birthday party also :)<div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi3k-OhFPE-89nz6Wwssdwkq6wSx5BgHzBftA6lWsNAkeJuD9JdLWo9apLxkoJLm12U85SY9T2j9IMQMo4SP8iqsVzGMG7cvaoe1hL_X90bVHrs1p6PNnW973WBC4dJC42uBtNClaafOaE/s640/blogger-image-1891236713.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi3k-OhFPE-89nz6Wwssdwkq6wSx5BgHzBftA6lWsNAkeJuD9JdLWo9apLxkoJLm12U85SY9T2j9IMQMo4SP8iqsVzGMG7cvaoe1hL_X90bVHrs1p6PNnW973WBC4dJC42uBtNClaafOaE/s640/blogger-image-1891236713.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgWXMINsnMR_6dgenKzn-QLh815bLlndJftPE6QPM1_FiNWcbbnr47A3NYP0JE4CDZcMECA0Ll4tvt1ExiQu495uYrpD5fzli0pSDh4DWhuEm1d5l95VL4YOC21QjTWQ84T1fxcBDltsJw/s640/blogger-image--1840991052.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgWXMINsnMR_6dgenKzn-QLh815bLlndJftPE6QPM1_FiNWcbbnr47A3NYP0JE4CDZcMECA0Ll4tvt1ExiQu495uYrpD5fzli0pSDh4DWhuEm1d5l95VL4YOC21QjTWQ84T1fxcBDltsJw/s640/blogger-image--1840991052.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgCaPgMrdEqa9ck_l5BZL3FN1-aldZzWldq6njAzMFViRQe9Js2vPBNPxkxHNx7h1RJDBcYA3XnoFv6DWxR584i2I-U3yl_EqZ3p_YvwXcC6c5FctEDm2JchET5LT5MW_txIvxLOzvwq0U/s640/blogger-image--700200381.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgCaPgMrdEqa9ck_l5BZL3FN1-aldZzWldq6njAzMFViRQe9Js2vPBNPxkxHNx7h1RJDBcYA3XnoFv6DWxR584i2I-U3yl_EqZ3p_YvwXcC6c5FctEDm2JchET5LT5MW_txIvxLOzvwq0U/s640/blogger-image--700200381.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhA-UUqTR90AIj5X0BqNptuJBMLd66ntniE6xp1sRlBeaIRqjwIhyrsYSzPBN7mj5jzfoEqPy07fY_0sjRuuIQYe-1pucbEX15dqe7IT6oI6tSA_dqU8DujPbOOBn5kbIcPD1Z_1XsvY6Y/s640/blogger-image-882380678.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhA-UUqTR90AIj5X0BqNptuJBMLd66ntniE6xp1sRlBeaIRqjwIhyrsYSzPBN7mj5jzfoEqPy07fY_0sjRuuIQYe-1pucbEX15dqe7IT6oI6tSA_dqU8DujPbOOBn5kbIcPD1Z_1XsvY6Y/s640/blogger-image-882380678.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhhvmjV13jsgQJTUvr7g7QDhhqrIkGqJ8RxgcQGuN6CfMiCtfyhklq5EGu_nMEl15ugajibxqc6w8i_NkKSeBANzXyraB5CYcgvBTdjByybhoBmIo1qm0OOArIcxRk7j_VRPBi27VjDlns/s640/blogger-image--1783216435.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhhvmjV13jsgQJTUvr7g7QDhhqrIkGqJ8RxgcQGuN6CfMiCtfyhklq5EGu_nMEl15ugajibxqc6w8i_NkKSeBANzXyraB5CYcgvBTdjByybhoBmIo1qm0OOArIcxRk7j_VRPBi27VjDlns/s640/blogger-image--1783216435.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEivok7whRmy85R26klWwm2oM2a3lx8ZDpuC4DzedxUZF9L3aT8B8JUlfO76_rOiy97IlVeSjDGlOY0iIWhtJJVYpohfHjCJlSQEP6fWktf_zCjtqiDuu6iDzZsxZX1F1c-zuNwBqww4I3s/s640/blogger-image-1476105408.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEivok7whRmy85R26klWwm2oM2a3lx8ZDpuC4DzedxUZF9L3aT8B8JUlfO76_rOiy97IlVeSjDGlOY0iIWhtJJVYpohfHjCJlSQEP6fWktf_zCjtqiDuu6iDzZsxZX1F1c-zuNwBqww4I3s/s640/blogger-image-1476105408.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh1qiZxZHfA6MGAkGWe-FQlJeXjuvdDs-kbAcTHdFF87c-aLaJAO8ezGd4sHlzitMv7dUSeqj4YDPFIg4sZsldZkqeMn6OOjhzkENXeh_oTaH6_tbOSFggfUjLQFCspRlMgv6Mrh3_Uo-M/s640/blogger-image--1417709588.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh1qiZxZHfA6MGAkGWe-FQlJeXjuvdDs-kbAcTHdFF87c-aLaJAO8ezGd4sHlzitMv7dUSeqj4YDPFIg4sZsldZkqeMn6OOjhzkENXeh_oTaH6_tbOSFggfUjLQFCspRlMgv6Mrh3_Uo-M/s640/blogger-image--1417709588.jpg" /></a></div>Santiago's Storyhttp://www.blogger.com/profile/15876325045939592915noreply@blogger.com0tag:blogger.com,1999:blog-435461135335237607.post-701977792143385322012-04-23T05:25:00.001-07:002012-04-23T05:26:05.794-07:00The day has come!!!Well the day has come our lil BIG man is THREE!!!! This time three years ago was the scariest time of my life!!!! Santi is here and he is WELL something I was told was unheard of!! Well as I have always said GOD is in control of this guy not doctors!!! Here to yet another amazing year full of love, joy, faith, compassion and LIFE!!! I love you Santi and together we will make a different in the trisomy community!! I love you!! Xoxoxo<div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjai4tp1sDzBpFS7yDRpNOxh5IJDBUXM573d9eTqKSMESxGObbhlETb3j_u5OyDPsBwlEJS0aj3wwM5cVYAFlbkEbDentDDs-5W-XBDKAWrjGQgrq1649uDmV9IhxHAn2eMfK50hwKtDZk/s640/blogger-image-1933757763.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjai4tp1sDzBpFS7yDRpNOxh5IJDBUXM573d9eTqKSMESxGObbhlETb3j_u5OyDPsBwlEJS0aj3wwM5cVYAFlbkEbDentDDs-5W-XBDKAWrjGQgrq1649uDmV9IhxHAn2eMfK50hwKtDZk/s640/blogger-image-1933757763.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh1_1aaS84CvrTAQzmPZLhnWqry83uGx1P9Xjqo-NhDSNzrhrwHSGfzqVd9eJJlrrHNpGqqXnSR3Gc_F7ObSfs5FHY_qUsBg3a43EQsvm1wKBDQjP2rfQSiRnjo6x9bL4K1ysXRsabT6LU/s640/blogger-image-886916995.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh1_1aaS84CvrTAQzmPZLhnWqry83uGx1P9Xjqo-NhDSNzrhrwHSGfzqVd9eJJlrrHNpGqqXnSR3Gc_F7ObSfs5FHY_qUsBg3a43EQsvm1wKBDQjP2rfQSiRnjo6x9bL4K1ysXRsabT6LU/s640/blogger-image-886916995.jpg" /></a></div>Santiago's Storyhttp://www.blogger.com/profile/15876325045939592915noreply@blogger.com0tag:blogger.com,1999:blog-435461135335237607.post-27919700578991063412012-03-28T19:17:00.008-07:002012-03-28T19:37:54.493-07:00TURNING THREE YEARS OLD!!!!!<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiSfRxeqCzYRyYH7BpHbHTXf-dTA-D7olE2A2w9v7f1f2lznM1Pl210b_B_uAjIG76H7EHli8uWr6BXAEEKrqw6WrruK30FSV62ATRnRVoIVLcRId3o57wEJyHOMhqG3fS7BfR0nze96VY/s1600/416925_10150705079345115_507845114_11397299_1303976756_n%255B1%255D.jpg"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 220px; height: 320px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiSfRxeqCzYRyYH7BpHbHTXf-dTA-D7olE2A2w9v7f1f2lznM1Pl210b_B_uAjIG76H7EHli8uWr6BXAEEKrqw6WrruK30FSV62ATRnRVoIVLcRId3o57wEJyHOMhqG3fS7BfR0nze96VY/s320/416925_10150705079345115_507845114_11397299_1303976756_n%255B1%255D.jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5725140347307541250" /></a><br />THIS IS 1 OF 5 BIRTHDAY INVTES FOR SANTIS THIRD BIRTHDAY PARTY THAT WILL BE APRIL 21ST 2012<br /><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi6cBAPBq1aijyeZ6HZQCfVOj7JM53FGqYfJW3GxCA8MVscrzyD41kZax1qd39AUdNJT5YxCqFWJGXMdXieCG6FDokl3gFX96fVKpUegM_Mv_X3dCtcl6BUgoDTIc8w4DEyH3Oz0qDdisk/s1600/421413_10150666615565115_507845114_11269835_385706264_n%255B1%255D.jpg"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 209px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi6cBAPBq1aijyeZ6HZQCfVOj7JM53FGqYfJW3GxCA8MVscrzyD41kZax1qd39AUdNJT5YxCqFWJGXMdXieCG6FDokl3gFX96fVKpUegM_Mv_X3dCtcl6BUgoDTIc8w4DEyH3Oz0qDdisk/s320/421413_10150666615565115_507845114_11269835_385706264_n%255B1%255D.jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5725140657886091426" /></a><br />THIS IS DEC. 2010<br /><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjSlhQkT1LAjlpZUHd5W8FLRu9kolHb0kGaqb67eRrF9sSmsZhtBcn-_FW9f_AEAY7bJhBzV7Rb8sBk8knQha2RfF-TfgdEgi8CJ6MDrbPoxZES45gqh2SqtM7Yz3A1OCftMxxN4AI11_I/s1600/313651_10150397736550115_507845114_10254488_866751572_n%255B1%255D.jpg"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 232px; height: 320px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjSlhQkT1LAjlpZUHd5W8FLRu9kolHb0kGaqb67eRrF9sSmsZhtBcn-_FW9f_AEAY7bJhBzV7Rb8sBk8knQha2RfF-TfgdEgi8CJ6MDrbPoxZES45gqh2SqtM7Yz3A1OCftMxxN4AI11_I/s320/313651_10150397736550115_507845114_10254488_866751572_n%255B1%255D.jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5725140560397746530" /></a><br />THIS IS OCT. 2010 AT SISTERS 5TH BIRTHDAY PARTY!!! HE LOVES WATER. HE'S MY LIL FISH!<br /><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhvQx6ML6dXWmtHR8CyySkiVDtCJuxOqwPr7ljafJDRg_JuVnQFntuscI5wlvwMyCxHa_m38llilw-o7hZBYWclUsdVLLx1-7k4CIflUX9G1bKfV5D9yEaNbjBPJXsPaWMU9ae9Ltr-w-8/s1600/69047189.jpg"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 218px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhvQx6ML6dXWmtHR8CyySkiVDtCJuxOqwPr7ljafJDRg_JuVnQFntuscI5wlvwMyCxHa_m38llilw-o7hZBYWclUsdVLLx1-7k4CIflUX9G1bKfV5D9yEaNbjBPJXsPaWMU9ae9Ltr-w-8/s320/69047189.jpg" border="0" alt=""id="BLOGGER_PHOTO_ID_5725140183789051314" /></a><br />Here's sweet Santi holding his little princess who is 2 years old and has trisomy 18.<br /><br />Alot has happened (as always since I'm always behind) but Santi got his make a wish and we went to Florida for a Trisomy event with some of my moms who I have talked to cried with and shared stories with for the past 2 1/2 years. It was AMAZING =) It was also talked about in the Florida paper here is the link http://www.orlandosentinel.com/multimedia/os-trisomy-family-gathering-20120326,0,100180.story.<br /><br />Santi has been doing AMAZING he is running every where. he definitely keeps me busy along with his Big Sister who's 5 and big brother who's 4. We have not been in the hospital all winter and Santi for the most part has been his healthiest yet. He makes me so very proud. <br /><br /><br />I will post more pictures of his wish trip once I get all the pictures uploaded. We got to go to Disney World and we also stayed at Give Kids the World which was such an amazing place in its self. <br />I will also post pictures from his birthday party once its over with.Santiago's Storyhttp://www.blogger.com/profile/15876325045939592915noreply@blogger.com0tag:blogger.com,1999:blog-435461135335237607.post-75692960632653879352010-08-23T18:21:00.001-07:002010-09-21T13:39:56.702-07:00Up-Date from the Last Six Months!<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgAF6_OSntnshJMWMknj43lKJmeVlT8xcrNbSP2nbdYVW3ffdCsPXBhl56Kaj4UiBDxjRXGujbIeLvdYP01YZtK6pBC_ShPG0JTbGxJaJItuuzX8a3rc7HwFmR32g4ouz6dDmMM0naiehQ/s1600/DSCN0893.JPG"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 320px; height: 240px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgAF6_OSntnshJMWMknj43lKJmeVlT8xcrNbSP2nbdYVW3ffdCsPXBhl56Kaj4UiBDxjRXGujbIeLvdYP01YZtK6pBC_ShPG0JTbGxJaJItuuzX8a3rc7HwFmR32g4ouz6dDmMM0naiehQ/s320/DSCN0893.JPG" border="0" alt=""id="BLOGGER_PHOTO_ID_5508782431689665810" /></a><br /><span xmlns=''><p style='text-align: center'><span style='color:#31849b; font-family:AR CHRISTY; font-size:18pt'>Hello all! <br /></span></p><p style='text-align: center'><span style='color:#31849b; font-family:AR CHRISTY; font-size:18pt'>I am so very sorry I have not kept up on Santi's blog. So much has been going on. I am truly sorry. So here is what's been happening for the last six months.<br /></span></p><p style='text-align: center'><span style='color:#4f6228; font-family:Times New Roman; font-size:18pt'><strong>March<br /></strong></span></p><p style='text-align: center'><span style='color:#31849b; font-family:Times New Roman; font-size:18pt'>Santi got very sick with his second bout of pneumonia. We treated it the best we could from home and then it got to the point where he would no longer eat. We took him into the hospital where we found out he was severely dehydrated. Santi stopped eating by mouth all together. He got his g-tube during this visit.<br /></span></p><p style='text-align: center'><br /> </p><p style='text-align: center'><span style='color:#4f6228; font-family:Times New Roman; font-size:18pt'><strong>April<br /></strong></span></p><p style='text-align: center'><span style='color:#31849b; font-family:Times New Roman; font-size:18pt; text-decoration:underline'><strong><em>HAPPY FIRST BIRTHDAY TO MY AMAZING BOY!!<br /></em></strong></span></p><p style='text-align: center'><span style='color:#31849b; font-family:Times New Roman; font-size:18pt'>That's right Santi had his first birthday party! A day we never thought we would see a day the doctors where for sure we would never see. Santi got out of the hospital just days before his birthday. This was by far the biggest milestone yet!<br /></span></p><p style='text-align: center'><span style='color:#4f6228; font-family:Times New Roman; font-size:18pt'><strong><br /> </strong></span></p><p style='text-align: center'><br /> </p><p style='text-align: center'><span style='color:#4f6228; font-family:Times New Roman; font-size:18pt'><strong>May-June<br /></strong></span></p><p style='text-align: center'><span style='color:#31849b; font-family:Times New Roman; font-size:18pt'>pneumonia 3 and 4<br /></span></p><p style='text-align: center'><span style='color:#31849b; font-family:Times New Roman; font-size:18pt'>Santi got 2 more pneumonia's back to back it was a very scary moment for us. Santi went into the hospital with the 4<sup>th</sup> one due to the fact it had only come one week after the 3<sup>rd</sup> was gone. We were told at this time that he has chronic lung disease and that his lung had taken a BIG beating from all these back to back pneumonia's.<br /></span></p><p style='text-align: center'><span style='color:#31849b; font-family:Times New Roman; font-size:18pt'>Santi was in the hospital from June28th to July19th. During this hospital stay he was put to sleep twice, 5 procedures, and 1 surgery. Santi had to have the fundo done due to bad reflux which was going in his lungs and causing the pneumonia's.<br /></span></p><p style='text-align: center'><br /> </p><p style='text-align: center'><br /> </p><p style='text-align: center'><span style='color:#4f6228; font-family:Times New Roman; font-size:18pt'><strong>August<br /></strong></span></p><p style='text-align: center'><span style='color:#31849b; font-family:Times New Roman; font-size:18pt'>Santi was doing very well after surgery. He came home he was growing, learning new stuff and just thriving.<br /></span></p><p style='text-align: center'><span style='color:#31849b; font-family:Times New Roman; font-size:18pt'>We went to GI on Aug 13<sup>th</sup> Santi was doing so well that Dr. M upped his feeds by 10cc so we are now at 200ml's He did very well the 13<sup>th</sup> – 15<sup>th</sup> no problems. Then on the 16<sup>th</sup> he started gagging we didn't think much of it. So the morning of the 17<sup>th</sup> I gave Santi his afternoon feeding when all of a sudden he started gagging and then stopped breathing, I had to do CPR and then he was fine playing and laughing like nothing had happened. After this we went back down to his normal 190ml's he is still gagging and throwing up. We went into the hospital on the 19<sup>th</sup> and came home on the 22<sup>nd</sup>. He had blood work done, every Virus swab there is and a upper GI followed by a chest and a tummy x ray, Everything came back good. So I asked to be sent home. I couldn't risk him caching anything. We had one kid in our room with mersa and another with really bad RSV. I will have follow up visits this week with pediatrician and GI.<br /></span></p><p style='text-align: center'><br /> </p><p style='text-align: center'><span style='color:#31849b; font-family:Times New Roman; font-size:18pt'>I will start updating Santiago's blog at the end of every month starting in September. As you can see things never really seem to slow down too much so it's really hard to update often.<br /></span></p><p style='text-align: center'><span style='color:#31849b; font-family:Times New Roman; font-size:18pt'>We praise GOD for all the miracles he continues to do for our SANTI BABY!!<br /></span></p><p style='text-align: center'><span style='color:#403152; font-family:Times New Roman; font-size:18pt'>SANTI IS A MIRICAL AND WE THANK GOD EVERYDAY FOR BLESSING US WITH HIM <br /><br /><br /><br /><3<br /></span></p><p style='text-align: center'><br /> </p><p style='text-align: center'/></span>Santiago's Storyhttp://www.blogger.com/profile/15876325045939592915noreply@blogger.com0tag:blogger.com,1999:blog-435461135335237607.post-67635699583395856142010-02-27T21:12:00.000-08:002010-02-27T21:13:40.974-08:00MY LIFE<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgrR3PrJGLVcVdjKO55g40yU5zi5HtzeRz0RsqycW9chWFMImNSyo1sdxXVEVrw55XqHNF2l2KW5MzII_hy4KLb8Pofn8I9K88DxnVxlcaM10ELKUGadd6Gk906kgGn78qYfFRUMcVistg/s1600-h/My+Life.png"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 200px; height: 81px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgrR3PrJGLVcVdjKO55g40yU5zi5HtzeRz0RsqycW9chWFMImNSyo1sdxXVEVrw55XqHNF2l2KW5MzII_hy4KLb8Pofn8I9K88DxnVxlcaM10ELKUGadd6Gk906kgGn78qYfFRUMcVistg/s200/My+Life.png" border="0" alt=""id="BLOGGER_PHOTO_ID_5443158064086912162" /></a>Santiago's Storyhttp://www.blogger.com/profile/15876325045939592915noreply@blogger.com1tag:blogger.com,1999:blog-435461135335237607.post-20504639028395252412010-02-27T21:05:00.001-08:002010-02-27T21:05:50.479-08:00<3 Heart Walk 2010 <3<span xmlns=''><p>We went to the Heart Walk today and it was so nice to see all the people there with their pictures and posters. Our team all together raised $745.00 and our goal was set at $500.00. I thought that was so amazing! This was our first of many years doing this and we all had a blast. More pictures will be posted very soon!! This picture is Bryce on the left he is Santi's BIG brother and he had enough I think the walk was a little much for him. Santi baby is in the middle and BIG sister a BIG supporter is to the right. I would like everyone to know that Isabella walked the whole time and we were so proud of her.</p></span>Santiago's Storyhttp://www.blogger.com/profile/15876325045939592915noreply@blogger.com0tag:blogger.com,1999:blog-435461135335237607.post-18500188408269172342010-02-22T08:40:00.001-08:002010-02-22T08:40:10.777-08:00<3 Happy 10 month Birthday to Our Santi Baby <3<span xmlns=''><p><span style='color:#984806; font-family:Andalus; font-size:14pt'>Just a little update on Santiago:<br /></span></p><p><span style='color:#984806; font-family:Andalus; font-size:14pt'> I am very happy to say he turned 10 months old yesterday, Feb. 21, 2010. Woo Hoo... <br /></span></p><p><span style='color:#984806; font-family:Andalus; font-size:14pt'>We have been truly blessed with your Santi baby. He has had some setbacks and that's okay. He is now on oxygen full time in hopes that he will not have to work so hard to breathe on his own. We are hoping by having him on the O2 full time he will now use the strength he was using to breath to grow and learn. Santi has therapies 3 times a week, starting with Feeding on Wend. Developmental on Thurs. and Physical on Fridays. All though this may seem like a lot it is worth every bit. There is nothing like watching your child does things that you were told would never happen. A Santi play with toys says Dada... and is learning others. He has come such a long ways and has fought very hard to get where he is today. there's a poem that I found and it is a poem I look at every time I fell like the road is getting to rough, so I thought I would share it with all of you. I hope when and if you every fell like the road is getting to rough you look back at this poem like I do and know that everything will work out at the end.<br /></span></p><p> <br /> </p><p><span style='color:#984806; font-family:Andalus; font-size:14pt'>Much Love <3<br /></span></p><p><span style='color:#984806; font-family:Andalus; font-size:14pt'>Tammie Bernal<br /></span></p><p> <br /> </p><p style='text-align: center'><span style='color:#4f6228; font-family:AR DARLING; font-size:24pt'><strong>DON'T QUIT <br /></strong></span></p><p style='text-align: center'><span style='color:#00b050; font-family:Verdana; font-size:10pt'><strong>When things go wrong, as they sometimes will,<br/>When the road you're trudging seems all uphill,<br/>When the funds are low, and the debts are high,<br/>And you want to smile, but you frown a bit,<br/>Rest if you must, but don't you quit.<br/><br/>Life is strange with its twists and turns,<br/>As everyone of us sometimes learns,<br/>And many a failure turns about,<br/>When he might have won had he stuck it out;<br/>Don't give up though the pace seems slow,<br/>You may succeed with another blow.<br/><br/>Success is failure turned inside out,<br/>The silver tint of the clouds of doubt,<br/>And you can never tell how close you are,<br/>It may be near when it seems so far;<br/>So stick to the fight when you're hardest hit,<br/>It's when things seem worst<br/>That you must not quit.</strong><br /> </span></p><p style='text-align: center'><br /> </p><p style='text-align: center'><span style='color:#00b050; font-family:Verdana; font-size:10pt'><strong>Author unknown</strong><br /> </span></p></span>Santiago's Storyhttp://www.blogger.com/profile/15876325045939592915noreply@blogger.com2tag:blogger.com,1999:blog-435461135335237607.post-48574196812746580212010-01-02T05:05:00.001-08:002010-01-02T05:05:48.027-08:00What will 2010 bring?Well…… a lot has been going on... <br />Santi now has PT, Developmental, and feeding therapy. He is doing great in them, very proud of my lil man. So we have had a couple tests done since my last post... Santiago was having seizure like activity so he had an EEG and MRI... Santi's EEG came back with no seizure activity (GREAT) but still ABNORMAL... so we just had his MRI done and will sit down with the neurologist on the 5th to hear about everything... We are super stressed for this one... But my lil man has been such a blessing to us. I would do this all over again if asked to. I have learned a great deal from him and I have become such a strong person. <br />Santi is a true miracle and he tells me that every day thru his daily activity. 2009 is the year I meet my Strong man and I found my true inner strength. Now I am looking forward to what 2010 brings us. I think GOD everyday for allowing us to still have Santi. We know that his father could call him home at anytime, but as long as I have him we spend each day to the fullest!<br />I will update soon after our neurologist apt!! <br />Thank you all for your continuing support and prayers.<br />Lots of <3 from the <br />Bernal FamilySantiago's Storyhttp://www.blogger.com/profile/15876325045939592915noreply@blogger.com0tag:blogger.com,1999:blog-435461135335237607.post-26094005304697293402009-12-14T11:30:00.000-08:002009-12-14T11:32:26.763-08:00SANTI to STRONG man!!Santi is doing soo well... We have him in Developmental theripy and PT both are giveing him high hopes.. and he is now in his first video.. I will up date later with more details but we are off to a OT apt..<br /><br />http://www.onetruemedia.com/shared?p=95f004d5e222bff180ae09&skin_id=801Santiago's Storyhttp://www.blogger.com/profile/15876325045939592915noreply@blogger.com1tag:blogger.com,1999:blog-435461135335237607.post-88267544272182700852009-10-21T06:54:00.001-07:002009-10-21T07:14:36.868-07:00God Is Good! <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhAHYmjtD6XeQLgphAp_2_MDQHkin-jEf2fQuzjJTiFBnuDy1K3VrvcTLUFIETOKBNlNmJ1u-epj9supLT359HbcFKXnMwy9jnkyWn7JKN1F1Ckdi_IllioYyns__qH3oIs8XvtuneKLY8/s1600-h/santi4.jpg"><img style="WIDTH: 200px; HEIGHT: 150px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5395056251085973394" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhAHYmjtD6XeQLgphAp_2_MDQHkin-jEf2fQuzjJTiFBnuDy1K3VrvcTLUFIETOKBNlNmJ1u-epj9supLT359HbcFKXnMwy9jnkyWn7JKN1F1Ckdi_IllioYyns__qH3oIs8XvtuneKLY8/s200/santi4.jpg" /></a>
<br /><div>I know it’s been a while since my last post. I would like to update everyone on little O Santi. Well let me start by saying a family got in contact with me who also has a little boy with Trisomy 13 ring chromosome ( amazing) their little boy’s name is Steal, a sweet strong boy like Santi baby. Steal is 16mo’s old and is doing well. I must add he’s a cute little one. His Mommy and Daddy are such loving and caring parents. I am very happy they found me; I was feeling all alone for a second. Well with all that said my Santi baby is doing okay. He just got over a little cold witch of course turned into about five other problems. At this point all he is dealing with is his breathing. He is still working pretty hard and pulling under his ribs. After talking with one of his doctors yesterday (Beth) she thinks this just might be him and that just may be the way it is going to be with his breathing. Beth is trying to set up testing for him though to make sure we are working in all the right areas. So I know one of the tests will be having a brain scan to make sure everything is A-Okay in that little head of his. We are working on physical and developmental therapies’. Witch I was a little scared about at first but have now come to realize this is a great step in moving forward. I always knew this time would come but when it came it was a reality check and I was really upset for a while. Thanks to my second mom (Brooke) I know everything going on is a step in the right direction and will better my angle. So thank you Brooke for everything. So I will update very soon on his testing and his therapies’. Thank you to everyone for the love and support... It really does mean a lot to our family!! Santiago will look back at all this one day and see what a great life he had and what loving people stayed behind him thru it all!! <3>
<br />Santiago's Storyhttp://www.blogger.com/profile/15876325045939592915noreply@blogger.com3tag:blogger.com,1999:blog-435461135335237607.post-36015086356709419852009-10-03T23:44:00.000-07:002009-10-04T00:04:35.264-07:00Bump's in the road STINK!!Well where do I start??? My miracle Santiago has been having a tough road here lately. He is pretty sick right now, he has a little URI going on but its taking a toll on him. I don't like it. He has been having a little trouble breathing and that always stresses me out. I took him in to see Beth yesterday and she said she def. thinks whatever is going on has nothing to do with his heart.. thank god. But that it may have more to do with his syndrome (Trisomy 13) and I don't like the sound of that.We have a lot of testing a head of us. I have been stressing a lot about him lately we are only 5 months away from his FIRST birthday and I know its supposed to be a happy time, but for me its a VERY stressful time. More then 80% of trisomy 13 babies don't make it to their first Birthday. With all this sick stuff and the trouble breathing I'm a little worried I'm not going to lie.I hate the not knowing part. I don't like playing the waiting game. I'm getting tired of everyone telling me well lets wait and see what happens. Ahhh NO I don't wanna wait and see what happens. Sorry I had to get this out I have been nothing but a mess since he started to get sick!! I LOVE my son sooo much I hate to see him going thru this. Sometimes i can't help but to ask GOD why me ? Why did he pick me to have a son with this problem? At time's I feel so lost and so help less!! Please pray for us my baby needs it hes a fighter but I just don't know how much more he has in him!! I love you my baby Santi <3 <3Santiago's Storyhttp://www.blogger.com/profile/15876325045939592915noreply@blogger.com3tag:blogger.com,1999:blog-435461135335237607.post-53543269090114359832009-09-15T11:11:00.000-07:002009-09-15T11:18:13.208-07:00<3 He Did It Like A Pro <3<em><span style="font-family:verdana;color:#ff6600;">So we put Santi on his tummy for the first time after surgery.. well really it was for the first time ever.. and my son did it like a pro!! He didn't look like the fish out of water that I thought he would look like =) He tried to crawl and then before I knew it he was going from his tummy to his back and from his back to him tummy again!! My gosh I was in tears this is such a big step for him!! We were not to sure when he would be able to do all this. So now I have a little peace of mind about his motor skills!!! LOOKING GOOD SON!!! I am so proud of you my Santi baby!! </span></em>Santiago's Storyhttp://www.blogger.com/profile/15876325045939592915noreply@blogger.com0tag:blogger.com,1999:blog-435461135335237607.post-70179122594238053782009-09-15T11:09:00.000-07:002009-09-15T11:11:35.932-07:00**Tummy Time**<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh1XAbjqFoFd-4e3oulJnLrv2HsBnzVsucxxjz3O77dhdlcns2vxPueAZH0E6RbdFUGti42Vgq_BJb2YgLFJnbBWf__ybQkjHh7HCwZ8FOhyphenhyphenBP5EgkPSIbtHXREMYigdOnZFosa1518YNk/s1600-h/GetAttachment%5B3%5D.jpg"><img style="WIDTH: 400px; HEIGHT: 300px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5381758338494334498" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh1XAbjqFoFd-4e3oulJnLrv2HsBnzVsucxxjz3O77dhdlcns2vxPueAZH0E6RbdFUGti42Vgq_BJb2YgLFJnbBWf__ybQkjHh7HCwZ8FOhyphenhyphenBP5EgkPSIbtHXREMYigdOnZFosa1518YNk/s400/GetAttachment%5B3%5D.jpg" /></a><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjWOefcLiVINX-i0tbbb1xDpzpe_EMmDBlqejdelLILm12KsmWOhx5-0CGq5S9LYij_Kwmz3gApRj-e9dyX4cx1WFwFAevllMk9m-ZEpnGmRQllOlFFX4KOd14c_SEaDrm73tvnwfhufns/s1600-h/GetAttachment%5B2%5D.jpg"><img style="WIDTH: 400px; HEIGHT: 300px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5381758258399912994" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjWOefcLiVINX-i0tbbb1xDpzpe_EMmDBlqejdelLILm12KsmWOhx5-0CGq5S9LYij_Kwmz3gApRj-e9dyX4cx1WFwFAevllMk9m-ZEpnGmRQllOlFFX4KOd14c_SEaDrm73tvnwfhufns/s400/GetAttachment%5B2%5D.jpg" /></a><br /><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjkqFNgrVGppgPZYjkE4C3kUVTN2jm4gnS0DUY5A0bAtTax4rT0ZKMbwmZxsa7hgORSxBhaFDCRfuGEaW2_NwFScbiFNxcdyThWKpJ-wZP6Pe66lBUVdCF20UTS82xazx53_tnP84cg0FY/s1600-h/GetAttachment%5B1%5D+(2).jpg"><img style="WIDTH: 400px; HEIGHT: 300px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5381758184774640642" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjkqFNgrVGppgPZYjkE4C3kUVTN2jm4gnS0DUY5A0bAtTax4rT0ZKMbwmZxsa7hgORSxBhaFDCRfuGEaW2_NwFScbiFNxcdyThWKpJ-wZP6Pe66lBUVdCF20UTS82xazx53_tnP84cg0FY/s400/GetAttachment%5B1%5D+(2).jpg" /></a><br /><br /><br /><div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhlpoJff4_XJ5D3JhpK38y_opaV5J7bLe682a45Elc7YO9cVorL46Mkch3YMuT5sMjVYcyQEHwdQqx6Nt7cRuwggbhMZpRmflG2-qXO-CfQRSytq1Biy4f_Q_bcGc_tse-NUT3bRIriH9o/s1600-h/GetAttachment%5B1%5D.jpg"><img style="WIDTH: 400px; HEIGHT: 300px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5381758121137486546" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhlpoJff4_XJ5D3JhpK38y_opaV5J7bLe682a45Elc7YO9cVorL46Mkch3YMuT5sMjVYcyQEHwdQqx6Nt7cRuwggbhMZpRmflG2-qXO-CfQRSytq1Biy4f_Q_bcGc_tse-NUT3bRIriH9o/s400/GetAttachment%5B1%5D.jpg" /></a><br /><br /><br /><br /><div></div></div></div></div>Santiago's Storyhttp://www.blogger.com/profile/15876325045939592915noreply@blogger.com0tag:blogger.com,1999:blog-435461135335237607.post-37947323066214693272009-09-11T21:28:00.000-07:002009-09-11T21:34:14.520-07:00Still going strong!!It has been 8 weeks since Santiago had his open heart surgery to closed the large hole in the lower chambers of his little heart. I am so very happy to say he is doing so well. When we went for our follow just the other day, Dr. Diab said he looked really well he also said that they did find a small hole in the upper chambers now but for me not to stress... what a funny doctor not to stress.. ha ha I love Doctor Diab tho he is so good to use that whole place is so good to us! So we go back in 6mos. for a follow up and more good new(fingers crossed). I am so happy we can also start tummy time now cant wait to see what Santi thinks about that!! I will post pics very soon of his tummy time! <3Santiago's Storyhttp://www.blogger.com/profile/15876325045939592915noreply@blogger.com0tag:blogger.com,1999:blog-435461135335237607.post-58087523463530097752009-09-06T22:34:00.001-07:002009-09-08T08:49:01.265-07:00Pictures<div align="left">Bryce lovin on his baby xoxo</div><div align="left"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgLKcKqF3DGCkyMUl6K4A6vocE8k1I2sTI1_f48lb-on1F5qeIvGoRoXnUJ9rwiWsQM3ltoY-QHvkTCLagFgnSNLeqatn5Qhv4gos1JovlAeWyfVUEdzPD6q0h8pLgLHeFFGFdYjPVwV6A/s1600-h/DSC02670.JPG"><img style="MARGIN: 0px 10px 10px 0px; WIDTH: 400px; FLOAT: left; HEIGHT: 226px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5378602054798897826" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgLKcKqF3DGCkyMUl6K4A6vocE8k1I2sTI1_f48lb-on1F5qeIvGoRoXnUJ9rwiWsQM3ltoY-QHvkTCLagFgnSNLeqatn5Qhv4gos1JovlAeWyfVUEdzPD6q0h8pLgLHeFFGFdYjPVwV6A/s400/DSC02670.JPG" /></a><br /></div><div align="left"></div><div align="left"><br /></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"><br /></div><div align="left"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhW4Vkir3B8tjsXSiDCwAmwo-hyGx3eqZiE_Xs3e1xT3JFdVWG-0xIoWCilRDl3rxNuRSQSyIUUv1r6jw6vIHJqpSO08p4cHE0XlszI4kclMjw9KJSeQsMl822tMIyH3NQf85cSIdNSrKY/s1600-h/DSC02654.JPG"><img style="MARGIN: 0px 10px 10px 0px; WIDTH: 400px; FLOAT: left; HEIGHT: 226px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5378601589893495554" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhW4Vkir3B8tjsXSiDCwAmwo-hyGx3eqZiE_Xs3e1xT3JFdVWG-0xIoWCilRDl3rxNuRSQSyIUUv1r6jw6vIHJqpSO08p4cHE0XlszI4kclMjw9KJSeQsMl822tMIyH3NQf85cSIdNSrKY/s400/DSC02654.JPG" /></a><br /><br /></div><div align="left"><br /><br /><br /></div><div align="left"></div><div align="left"><br /><br /><br /></div><div align="left"></div><div align="left"><br /><br /></div><div align="left"></div><div align="left"><br /><br /></div><div align="left"></div><div align="left"><br /></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left">Big sister Isabella..</div><div align="left"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEioYstKN1ow54V48vHY1L4QOlehkEkWGJ8ogrJn_HWJTaDIG4JihA7OMW9hWZ5AM-AYBVI04gBKnOirrwkK9zk51MweMWVV3nUS1QuwBEc9XMSWcq6RyuctpzHS2hWrnSrcYnKlkz0ZYmg/s1600-h/DSC02534.JPG"><img style="MARGIN: 0px 10px 10px 0px; WIDTH: 400px; FLOAT: left; HEIGHT: 226px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5378596117667505602" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEioYstKN1ow54V48vHY1L4QOlehkEkWGJ8ogrJn_HWJTaDIG4JihA7OMW9hWZ5AM-AYBVI04gBKnOirrwkK9zk51MweMWVV3nUS1QuwBEc9XMSWcq6RyuctpzHS2hWrnSrcYnKlkz0ZYmg/s400/DSC02534.JPG" /></a><br /><br /><br /><br /><br /></div><div align="left"></div><div align="left"><br /><br /><br /><br /><br /></div><div align="left"></div><div align="left"><br /><br /><br /><br /></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left">His smile lights up the room on the darkest of days!! <3<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj9D1T0JwDZUn7-VUJL7TSgfU0Vtn5ppSUdLzNoUfLEFEuB2ltyxf7JXSYsTS55dwi_fS3J-GStnm69oiNftM7xVMrKgBc96EyPS0HY94y2sHRWP7wOBLDQV1PiR913fYsSjT_LPk5NC50/s1600-h/DSC02172.JPG"><img style="MARGIN: 0px 10px 10px 0px; WIDTH: 400px; FLOAT: left; HEIGHT: 226px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5378595581268305794" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj9D1T0JwDZUn7-VUJL7TSgfU0Vtn5ppSUdLzNoUfLEFEuB2ltyxf7JXSYsTS55dwi_fS3J-GStnm69oiNftM7xVMrKgBc96EyPS0HY94y2sHRWP7wOBLDQV1PiR913fYsSjT_LPk5NC50/s400/DSC02172.JPG" /></a><br /></div><div align="left"><br /><br /><br /><br /><br /></div><div align="left"><br /><br /><br /><br /><br /></div><div align="left"></div><div align="left"><br /><br /></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left">Our <img style="MARGIN: 0px 10px 10px 0px; WIDTH: 400px; FLOAT: left; HEIGHT: 226px; CURSOR: hand" id="BLOGGER_PHOTO_ID_5378594922082829186" border="0" alt="" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiWFCCyHYKtrrPSHD7jy91BH5JzGyn6WKIbnWJqvLdkuilrGJELWGV3x_EG26aSW0NqhziIiZ7pfbsKHoj1hYiM1SG4rw9PmuCc4Jp-u9-6fuR9CfJekdLY_Nu8IC8deBumd8k9ig8S6Sc/s400/DSC02173.JPG" /> strong baby boy after his open heart surgery </div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left"></div><div align="left">he came off the vent that night. (against all odds he pulled thru).We were told it would be weeks before he came off!! So proud of you son!</div><div align="left"><br /><br /><br /><br /><br /><br /></div><div align="left"></div><div align="left"><br /><br /><br /><br /> </div>Santiago's Storyhttp://www.blogger.com/profile/15876325045939592915noreply@blogger.com0