To infinity and beyond....

After Santis scary episode last week, we wanted to make sure Halloween was fun! We are so grateful all three of our kids joined us in trick or treating. Bella was a Bumble Bee, Bryce was Sponge Bob and Santiago was Buzz Lightyear. Santi is doing better still very tired a lot more then usual. We are still trying to figure out what happen but as of right now we have no answers. Please keep him in your thoughts and prayers. I never want to call 911 again!!

Scared like no other!

So Santi wanted to make sure mommy was on her toes Tuesday. Tuesday I had to call 911 because Santi was unresponsive and could not wake him for nothing. The fire department got to the house and after a little while Santi woke up. They put him in the back of the ambulance and Santi started screaming ( music to my ears ) when I arrived at the hospital he was back to his crazy self. We are not sure what caused the event on Tuesday but we are so happy to have our sweet warrior prince back home and in our arms . It puts into perspective just how fast life can be taken from us. I truly thought I might have lost my son Tuesday. Thank you to everyone who prayed for us. We are truly grateful !!

Photos

What a hard life!!! Says Santiago who is THREE years old and LIVING life with Trisomy 13 ring!! What a blessing <3

First parent teacher conference!

Santi is doing so well in school!! His teacher just adores him. It helps to let your special kids go to school if you have a good relationship with the teacher. Santi is following instructions. He's hanging up his back pac he sits and listens to classroom stories and songs. He's just so amazing!! He continues to do ALL things we were told he never would. Keep showing them son!! So proud of you!! Xoxo when he gets home I give him the IPad and he gets so into it.. I just low him TONS!!!

Santi counted to FOUR!!!!

Yesterday during speech Santi counted to FOUR!!!! I am so proud of him and all his hard work. He truly AMAZES me everyday!!!

Imagination Movers

Santi attended is first LIVE concert with HOPEkids Arizona. We were all able to go to the Imagination Movers LIVE concert and had a blast. Santi was dancing and grooving. It was great to see him enjoy himself so much!! He was even yelling and screaming for more more more!! Haha Everyone enjoyed the concert a night to remember for sure!

First day of Preschool

Santis off to his first day of preschool! He went with his teacher as if he's known her for years lol mommy on the other hand is a stress ball. I'm sure he's having a blast!! I'll post more about his big day once he gets home!! :)

Catching up!

Well I haven't updated for a while.. Santi and the rest of the kids had gotten really sick so I was busy busy!! Their on the up n up now and back to their ever so crazy selfs lol. Santi is such a crazy boy haha I just love watching him he just amazes me. He's come so very far am ever so grateful. He pulled out his tube (I know big surprises) haha he hands it to me and just STANDS there while I pop it back in no even a move he then takes the water and pushes in by himself! Omg this kid hahaha. I have photos to post also but I'm tired and heading to bed! Kisses to heaven tonight for all those beautiful angels who have gone home way to soon!! Xoxoxo <3

Peter piper fun!!

Yesterday we took the kids to PPP and they had a blast. It's fun to watch Santi now as he's getting older. He's so into everything, he was watching everything and what people were doing around him and really into the games. He's so much fun and has such a great personality! It's a dream come true watching ALL my kids playing and having fun together. 3 years ago we would of never thought it was possible . Thank you LORD for blessing me with such an amazing family <3

He's at it again!!!

Santi man is crazy!!! He has pulled his G tube out yet again!!!! (mind you he just did this a few weeks ago) Have to take him in to the surgeon because he did it over night AGAIN!!!! He's real smart I think he does it at night now knowing we won't be able to get it back in come morning time!! Lil brat!! Hahaha on the up side of everything he has done better on his swallow study so he is improving so maybe we can remove the g tube for good some time!! That's our excitement for the day so far!! Hope everyone is well <3

Pure Joy!

Santi is the joy of my life as well are my other two kids! I am amazed everyday to see Santi grow and learn. His newest thing is to try and hook himself up to his tube ( which he has not used for feeds in forever ) hahaha he's so smart ! Also want to tell you that Santi had a swallow study yesterday and he has improved tremendously he has gone from honey think to nectar this is so huge for us he has been on honey for 2 years now with no change until now!!!!! Amazing so proud of my lil big man!! Xoxo And here's some pics from his third birthday party also :)

The day has come!!!

Well the day has come our lil BIG man is THREE!!!! This time three years ago was the scariest time of my life!!!! Santi is here and he is WELL something I was told was unheard of!! Well as I have always said GOD is in control of this guy not doctors!!! Here to yet another amazing year full of love, joy, faith, compassion and LIFE!!! I love you Santi and together we will make a different in the trisomy community!! I love you!! Xoxoxo

TURNING THREE YEARS OLD!!!!!

THIS IS 1 OF 5 BIRTHDAY INVTES FOR SANTIS THIRD BIRTHDAY PARTY THAT WILL BE APRIL 21ST 2012


THIS IS DEC. 2010


THIS IS OCT. 2010 AT SISTERS 5TH BIRTHDAY PARTY!!! HE LOVES WATER. HE'S MY LIL FISH!


Here's sweet Santi holding his little princess who is 2 years old and has trisomy 18.

Alot has happened (as always since I'm always behind) but Santi got his make a wish and we went to Florida for a Trisomy event with some of my moms who I have talked to cried with and shared stories with for the past 2 1/2 years. It was AMAZING =) It was also talked about in the Florida paper here is the link http://www.orlandosentinel.com/multimedia/os-trisomy-family-gathering-20120326,0,100180.story.

Santi has been doing AMAZING he is running every where. he definitely keeps me busy along with his Big Sister who's 5 and big brother who's 4. We have not been in the hospital all winter and Santi for the most part has been his healthiest yet. He makes me so very proud.


I will post more pictures of his wish trip once I get all the pictures uploaded. We got to go to Disney World and we also stayed at Give Kids the World which was such an amazing place in its self.
I will also post pictures from his birthday party once its over with.