I am so very sorry I have not kept up on Santi's blog. So much has been going on. I am truly sorry. So here is what's been happening for the last six months.
Santi got very sick with his second bout of pneumonia. We treated it the best we could from home and then it got to the point where he would no longer eat. We took him into the hospital where we found out he was severely dehydrated. Santi stopped eating by mouth all together. He got his g-tube during this visit.
HAPPY FIRST BIRTHDAY TO MY AMAZING BOY!!
That's right Santi had his first birthday party! A day we never thought we would see a day the doctors where for sure we would never see. Santi got out of the hospital just days before his birthday. This was by far the biggest milestone yet!
pneumonia 3 and 4
Santi got 2 more pneumonia's back to back it was a very scary moment for us. Santi went into the hospital with the 4th one due to the fact it had only come one week after the 3rd was gone. We were told at this time that he has chronic lung disease and that his lung had taken a BIG beating from all these back to back pneumonia's.
Santi was in the hospital from June28th to July19th. During this hospital stay he was put to sleep twice, 5 procedures, and 1 surgery. Santi had to have the fundo done due to bad reflux which was going in his lungs and causing the pneumonia's.
Santi was doing very well after surgery. He came home he was growing, learning new stuff and just thriving.
We went to GI on Aug 13th Santi was doing so well that Dr. M upped his feeds by 10cc so we are now at 200ml's He did very well the 13th – 15th no problems. Then on the 16th he started gagging we didn't think much of it. So the morning of the 17th I gave Santi his afternoon feeding when all of a sudden he started gagging and then stopped breathing, I had to do CPR and then he was fine playing and laughing like nothing had happened. After this we went back down to his normal 190ml's he is still gagging and throwing up. We went into the hospital on the 19th and came home on the 22nd. He had blood work done, every Virus swab there is and a upper GI followed by a chest and a tummy x ray, Everything came back good. So I asked to be sent home. I couldn't risk him caching anything. We had one kid in our room with mersa and another with really bad RSV. I will have follow up visits this week with pediatrician and GI.
I will start updating Santiago's blog at the end of every month starting in September. As you can see things never really seem to slow down too much so it's really hard to update often.
We praise GOD for all the miracles he continues to do for our SANTI BABY!!
SANTI IS A MIRICAL AND WE THANK GOD EVERYDAY FOR BLESSING US WITH HIM